I qualified as an Agricultural Engineer in 1989 followed by a Post-Graduate Diploma in Operations and Industrial Management and moved on to Health & Safety in the fastener industry where I have been for 30 years.
In 1997 my wife and I were blessed with the birth of our son, Murray. In 2005 he was finally diagnosed with Duchenne muscular dystrophy (DMD). This obviously had a major impact on our lives and apart from setting up our own charity (Murray’s Muscles to help other MD patients fund equipment in the Midlands), I became heavily involved with the then Muscular Dystrophy Campaign (MDC) (now Muscular Dystrophy UK (MDUK)). I sat on the Clinical Research Lay Panel for a number of years helping to guide research funding to the most appropriate projects for the MD population.
I have worked with the European Medical Association for drug trial assessment. From my personal experience of muscular dystrophy, I have developed a wealth of knowledge around equipment and adaptations.