We want to hear from you
Our annual Service User Survey is now open, and we are asking everyone who uses our services to take a few minutes to share their experiences.
Your feedback helps us understand the difference our support is making, identify where we can improve and shape the future of Muscular Dystrophy Support Centre.
Last year’s survey showed just how important this feedback is:
%
said our support helps them feel more confident and in control
%
said our therapies help slow or prevent deterioration
%
said our support reduces their reliance on NHS services
%
said the Centre gives them a community to belong to
But statistics only tell part of the story. One service user told us:
“Without the support of the centre I would not be able to function on a day-to-day basis.”
Another described the Centre simply as:
“A lifeline.”
Help us understand your experience
We need your feedback to help us build on what is working and understand where we can do better.
Your responses will help shape our future services and priorities. They also provide vital evidence of the difference our work makes, helping us demonstrate our impact and secure funding to continue supporting people living with muscular dystrophy and related neuromuscular conditions.
It only takes a few minutes to complete the survey, but your feedback could help shape what comes next.
The survey only takes a few minutes to complete, and as a thank you, everyone who takes part will have the opportunity to enter a prize draw to win a voucher.
Thank you for taking the time to share your experiences with us.


