2018 Service User Survey Results

We are pleased to be able to present the results from our 2018 Service User survey. The survey was conducted between 10th February and 15th May was promoted at our Open Day, through our social media channels and in our centre. The survey was available in paper and online, with support to complete it where required. We had 65 responses- which represents 53% of people who have used our services in the last year- a fantastic response.

Here are our key findings: 

Demographics –The gender split was even, 45% of our responders were aged 50+ and the most common reported condition was Facioscapulohumeral (FSH), although 10 different types of MD were reported.

Attendance- 47% of those surveyed attend the centre fortnightly, rising to 86% attending every month, showing that, for those surveyed, we are able to provide regular appointments.

Transport –100% of responders get to the centre by car- perhaps unsurprising due to the nature of the condition and Centre’s relative inaccessibility by public transport.

Therapies- Of those who receive Physiotherapy, Osteopathy and Hydrotherapy, 100% said it was either somewhat or very beneficial

Wellbeing- When asked about the impact the MD support centre has on wellbeing, people responded positively, 86% said it improves their self-confidence, 90% said it improves their feeling of being in control and 80% said it improves their knowledge.

When asked about the impact the MD Support Centre has on their every day life- the biggest impact was on people’s ability to understand and manage their condition confidently, but for many service users they are able to do more with family and friends, have holidays, drive a car and maintain their hobbies.


Health

  • 100% say their therapy partly or fully keeps their joints flexible
  • 95% say their therapy partly or fully maintains their muscle strength
  • 83% say their therapy partly or fully keeps them walking
  • 48% say their therapy helps them stay in work (although 48% responded n/a)
  • 52% responded that their therapy partly or fully keeps them out of hospital (the other 48% responded N/A)
  • 59% said that their therapy partly or fully reduces/prevents them from having falls (14% not achieved, 16% n/a)
  • 74% said their therapy partly or fully enables them to manage pain (9% not achieved, 16% n/a)


94% said the MD Support Centre slows or prevents deterioration of their condition


Healthcare

  • Only 10% of those surveyed had unplanned hospital admissions in the last 12 months
  • 75% of those who received our physiotherapy when they had acute or urgent issues said this avoided a trip to their GP/ hospital/ other NHS department

When asked ‘Which professional do you feel plays the primary role in helping you manage your condition?’ 67% responded ‘an MD Support Centre therapist’


Friends and family test-
100% of respondents would be likely or extremely likely to recommend us to friends and family if they needed similar treatment

What we could change- we received feedback on three issues- distance people had to travel to the centre, problems with parking/ accessibility of the car park at the Centre and availability of appointments. We will take these concerns on board and are working to address them.

Service User Comments Our final question asked for any other comments, and we received some wonderful responses- here are a few:

Gave much more confidence in myself. Lovely people, amazing work, makes so much difference to people’s lives.

 

Amazing professional physiotherapists that deserve even greater recognition!

 

I think that the service and staff are outstanding.

 

Really useful to have consistency of care, and see therapists who know about my condition.

 

You all do a fantastic job, from the moment you work through the doors you are made to feel welcome. keep up the fantastic work you do. THANK YOU!

MDSC goes international!

MD Support Centre were kindly invited to FSH Society’s biannual FSHD Connect Conference in Las Vegas – with over 400 attendees including 140+ international researchers. Many thanks to FSH Society for the invitation, it was a great opportunity to connect and learn more about advancements in research.

Our team from MDSC gave a talk about therapies and support provided at our Centre in a breakout session on Physical Therapy and Bodywork. We were joined by Katy Eichinger, PT from Univ of Rochester and Beatriz Nascimento, professor of OT and instructor at the School for Self Healing. We had the the chance to learn from Katy and Beatriz’s experience and advice on physical therapies.

Birmingham Satellite Clinic begins!

We are delighted to announce that MD Support Centre has now opened a Birmingham Satellite Clinic!

Following the success of our Droitwich Satellite clinic which began in Feb 2017, we have now started providing physiotherapy and osteopathy at a new satellite clinic in Birmingham in Feb 2018.

In awareness of the challenges that traveling to our centre in Coventry pose for some service users, this new satellite clinic will make it easier for people living in and around Birmingham to access therapies. The Birmingham clinic is at Acorns Children’s Hospice in Selly Oak, with physiotherapists Ulrike and Chandni and osteopath France.

If you are interested in attending the new clinic, please discuss with your therapist about MDSC supporting you at this new location. This satellite clinic is in addition to our regular services at Coventry, which remains our main location. The satellite clinic will be running initially as a trial scheme, and has been funded by an Awards for All grant from the Big Lottery Fund. If this trial scheme is successful and further funding can be raised, we aim to open further satellite clinics in the Midlands.

Judy wins Galaxy Outstanding Volunteer Award!

Many congratulations to Judy Wellby on winning the Outstanding Volunteer Award from the Galaxy Hot Chocolate Fund project!

Judy is a dedicated and loyal supporter of the Centre, always ready to volunteer and help where she can. We nominated Judy based on her work at her Church, her endless production of fudge for fundraising, and then taking on a Skydive from 13,000 feet last year!

We are delighted that Judy has been selected as the winner of this award in recognition of her voluntary service and fundraising – it is because of wonderful supporters like Judy that we are able to continue providing essential therapies to people with muscle-wasting conditions.

It was our pleasure to present Judy with a Luxury Hamper provided by Galaxy as part of her prize, and as our appreciation for her support and service.

A very big THANK YOU JUDY, from everyone at NMC Midlands!

Droitwich Satellite Clinic

MD Support Centre’s first Osteopathy satellite clinic.

Based in Droitwich Spa, this outreach clinic has enabled more of our service users to have access to the benefits of Osteopathy treatments with Jane.

The satellite clinic commenced Feburary 9th 2017 and has proved to be a great success. Clinics take place every 2nd Thursday of the month.

Appointments will be from 10am till 2pm.

The clinic takes place at:
Droitwich Spa Osteopaths Ltd, 3 King George Avenue, Droitwich Spa, WR9 7BP

Call 02476 100770 or email roxanne@mdsupportcentre.org to book.

If you’ve not tried Osteopathy before, speak with your regular physiotherapist to see if it might be right for you!

Volunteers Needed!

 

Volunteer for MD Support Centre!

Do you have a few hours to spare? Would you like to support a worthwhile cause and learn new skills?
THEN WE NEED YOU!

We need YOUR help with

  • Reception Duties
  • Database Management
  • Direct Marketing
  • Fundraising
  • PR and Admin

GET IN TOUCH TODAY!

Call 02476 100770 or email kay@mdsupportcentre.org

 

We are also looking for a volunteer to escort Service Users between the centre and the physiotherapy suite.  New Safeguarding procedures at Hereward College are causing a drain on our limited resources, so any and all help is gratefully received.  This will be Tuesdays and/or Wednesdays.

Contact roxanne@mdsupportcentre.org or ask at reception.