Annual Golf Day raises £4000!

A big thank you to Armson Electrical Services Ltd and M&S Leicester for another fantastic Charity Golf Day in Support of the Muscular Dystrophy Support Centre (NMC Midlands).

Thursday 10th August was a brilliant day at Forest Hill Golf & Conference Centre as Neil Armson, Brendan Carr of Marks & Spencer and their team kicked off the 4th annual Armson Golf Day! The team wore their stylish purple polos with the MDSC logo, organised by Brendan. It was a thoroughly enjoyable day for all, which raised a huge £4000 for the Centre!

2018 Service User Survey Results

We are pleased to be able to present the results from our 2018 Service User survey. The survey was conducted between 10th February and 15th May was promoted at our Open Day, through our social media channels and in our centre. The survey was available in paper and online, with support to complete it where required. We had 65 responses- which represents 53% of people who have used our services in the last year- a fantastic response.

Here are our key findings: 

Demographics –The gender split was even, 45% of our responders were aged 50+ and the most common reported condition was Facioscapulohumeral (FSH), although 10 different types of MD were reported.

Attendance- 47% of those surveyed attend the centre fortnightly, rising to 86% attending every month, showing that, for those surveyed, we are able to provide regular appointments.

Transport –100% of responders get to the centre by car- perhaps unsurprising due to the nature of the condition and Centre’s relative inaccessibility by public transport.

Therapies- Of those who receive Physiotherapy, Osteopathy and Hydrotherapy, 100% said it was either somewhat or very beneficial

Wellbeing- When asked about the impact the MD support centre has on wellbeing, people responded positively, 86% said it improves their self-confidence, 90% said it improves their feeling of being in control and 80% said it improves their knowledge.

When asked about the impact the MD Support Centre has on their every day life- the biggest impact was on people’s ability to understand and manage their condition confidently, but for many service users they are able to do more with family and friends, have holidays, drive a car and maintain their hobbies.


Health

  • 100% say their therapy partly or fully keeps their joints flexible
  • 95% say their therapy partly or fully maintains their muscle strength
  • 83% say their therapy partly or fully keeps them walking
  • 48% say their therapy helps them stay in work (although 48% responded n/a)
  • 52% responded that their therapy partly or fully keeps them out of hospital (the other 48% responded N/A)
  • 59% said that their therapy partly or fully reduces/prevents them from having falls (14% not achieved, 16% n/a)
  • 74% said their therapy partly or fully enables them to manage pain (9% not achieved, 16% n/a)


94% said the MD Support Centre slows or prevents deterioration of their condition


Healthcare

  • Only 10% of those surveyed had unplanned hospital admissions in the last 12 months
  • 75% of those who received our physiotherapy when they had acute or urgent issues said this avoided a trip to their GP/ hospital/ other NHS department

When asked ‘Which professional do you feel plays the primary role in helping you manage your condition?’ 67% responded ‘an MD Support Centre therapist’


Friends and family test-
100% of respondents would be likely or extremely likely to recommend us to friends and family if they needed similar treatment

What we could change- we received feedback on three issues- distance people had to travel to the centre, problems with parking/ accessibility of the car park at the Centre and availability of appointments. We will take these concerns on board and are working to address them.

Service User Comments Our final question asked for any other comments, and we received some wonderful responses- here are a few:

Gave much more confidence in myself. Lovely people, amazing work, makes so much difference to people’s lives.

 

Amazing professional physiotherapists that deserve even greater recognition!

 

I think that the service and staff are outstanding.

 

Really useful to have consistency of care, and see therapists who know about my condition.

 

You all do a fantastic job, from the moment you work through the doors you are made to feel welcome. keep up the fantastic work you do. THANK YOU!

MDSC goes international!

MD Support Centre were kindly invited to FSH Society’s biannual FSHD Connect Conference in Las Vegas – with over 400 attendees including 140+ international researchers. Many thanks to FSH Society for the invitation, it was a great opportunity to connect and learn more about advancements in research.

Our team from MDSC gave a talk about therapies and support provided at our Centre in a breakout session on Physical Therapy and Bodywork. We were joined by Katy Eichinger, PT from Univ of Rochester and Beatriz Nascimento, professor of OT and instructor at the School for Self Healing. We had the the chance to learn from Katy and Beatriz’s experience and advice on physical therapies.

MD Support Centre celebrates 5th anniversary at Open Day 2018

MD Support Centre turned 5 on 29th January 2018!

29th January marked the start of services at the Centre 5 years ago and on February 10th Muscular Dystrophy Support Centre held our second annual Open Day, highlighting our fifth anniversary and disability travel possibilities. Our fantastic therapists lead the day with various sessions focusing on the support we provide, a luncheon, and our AGM. There was also be a range of stalls featuring accessible travel and transport providers.

Geoffrey Robinson MP addresses attendees at Open Day.

Geoffrey Robinson, MP for Coventry North West, joined in with a Seated Pilates taster session with the Centre’s physiotherapists. He later congratulated the Centre for reaching its fifth anniversary and officially opened the day and the AGM.

Thank you to everyone who attended our Open Day 2018! We would also like to thank our amazing therapists and volunteers who made the day really special.

 

 

Check out the video of the day, including footage of our therapist led sessions, AGM, and visit from Geoffrey Robinson MP.

Thank you to our fantastic intern, Alice Knibbs, for putting this video together.

We hope that you all enjoyed the day as much as we did!


* the 2018 Open Day is supported by the Heart of England Community Foundation.

Birmingham Satellite Clinic begins!

We are delighted to announce that MD Support Centre has now opened a Birmingham Satellite Clinic!

Following the success of our Droitwich Satellite clinic which began in Feb 2017, we have now started providing physiotherapy and osteopathy at a new satellite clinic in Birmingham in Feb 2018.

In awareness of the challenges that traveling to our centre in Coventry pose for some service users, this new satellite clinic will make it easier for people living in and around Birmingham to access therapies. The Birmingham clinic is at Acorns Children’s Hospice in Selly Oak, with physiotherapists Ulrike and Chandni and osteopath France.

If you are interested in attending the new clinic, please discuss with your therapist about MDSC supporting you at this new location. This satellite clinic is in addition to our regular services at Coventry, which remains our main location. The satellite clinic will be running initially as a trial scheme, and has been funded by an Awards for All grant from the Big Lottery Fund. If this trial scheme is successful and further funding can be raised, we aim to open further satellite clinics in the Midlands.

Quiz Night fun in Keresley

Our Quiz Night on November 24th was fantastic and raised £500. Thanks to everyone for coming along and supporting our MD support centre.

Very special thanks to Hare and Hounds in Keresley for the gift of the venue and the food, to Russ for being a fantastic Quizmaster and to Tracey who worked hard selling raffle tickets.

The Winners were Heathenders with 76 points – Well done!

Pack of 5 take on the Winter Wolf Run!

THANK YOU!

Following on from our 3 wolves in September, on Saturday 4th November a pack of 5 wolves; Jane Bryant, Sarah Poole, Kevin Poole, Demsey Slater and our very own Kirsty took on the Winter Wolf Run in support of MDSC. The Wolf Run is a hardcore 10k run across raw natural terrain, including open ground, woodland, lakes and thick mud.

They have raised over £800 with this exhilarating challenge – we cannot thank you enough – you are all awesome!!

Well done and congratulations – you did it!!!

A fab Quiz ‘n’ Chips Night!

Our huge congratulations and thanks goes to our MDSC Walsall Fundraising and Awareness Team – Chris, Jennika and Tracey.

They held their first fundraising event a ‘Quiz and Chips Night’ on 23rd September 2017.
80 people had a great time at the Chuckery Club in Walsall with a fantastic quiz and tasty fish and chips.
£590 was raised for the centre and we cannot thank you enough – you are awesome and we look forward to your next event – amazing!!!

Thanks also to The Chuckery Club and Shelfjelds Fish Bar for supporting the Team with their event.
Your help and support was very much appreciated!

Thank you!

Fun and games at Stroll, Walk & Roll!

A fantastic day out at Stroll, Walk and Roll on 17th Sept!

Sun was shining, Bosworth Water Park stunning, Walk was exhilarating and picnic well earned. Thank you to everyone who came for enjoying the afternoon with us and raising funds.

A special thank you to the Nuneaton & Hinckley Fundraising and Awareness team for organising such a memorable event at Bosworth Water Park. Raising an amazing £663.00 for our centre, you are truly an awesome team – your dedication and determination to raise funds are helping so many other individuals to benefit from our services at the Muscular Dystrophy Support Centre – thank you!

If you would like to join one of our Fundraising and Awareness teams and help us with our events, please do contact kay@nmc-midlands.co.uk